Monthly Archives: July 2013

Getting Thru Down Time (or When the Road Ahead Seams to Crumble)

There should be some sort of cliche phrase to mean “The month before back to school;” maybe it would end up as the title of a soap-opera.  🙂 or maybe a miracle.

IMG_3592

This month the phrase at our house would be “Down-Time.”   First our oldest son’s computer fried, then the second’s went down to a trojan horse.  My sweet hubby sighed and took it on at nights, even tho he was fixing major down times at work.  So when my computer started slowing down, I was afraid to say something.  But eventually, it was taking a full minute or more to recognize keystrokes- so I told.  That awesome Aspie just gave me a sad little smile and added it to the pile.  Only asking for extra hugs to keep him going.  He is so good to me!

In the mean time, I have been trying to figure out my own health– I feel like my computer did, so slow and sluggish.  I used to be able to say, “I’ve got my kids clean, in clean clothes and fed and homework done, what more do you want”  but even that is getting monumental.  So while we were all waiting for our life to return to normal, (picture 4 Autistic kids in a house where everything is suddenly not only a different routine, but broke) I took the 3 younger ones to pizza places and to the bookstore and such.  Then several things happened almost at the same time;  I got told all my blood tests are normal, I’m technically “healthy”, I found a research comment on the internet, I found a book, and back to school schedules started getting filled up (I have only forgotten one so far)  But the book and the article have lifted my spirits tremendously.

The article-http://www.disabilityscoop.com/2009/11/10/autism-moms-stress/6121/

is the second time I have read about Special needs mom showing stress symptoms that looks like Battle Fatigue- YES!  Finally a real life validation for how I feel.  The article posed the comment “but the long-term effect on their physical health is not yet known.”  I can tell them… and I found a book that expounded.

The book- “Adrenal Fatigue- the 21st Century Stress Syndrome” by James L. Wilson, N.D., D.C., Ph.D.

the cover says “What it is and how you can recover Energy, Immune Resistance, Vitality, Enjoyment of Life”  and the example subjects in the introduction could be a hidden camera of me.  I devoured the book in just a day- And my first thought was that every special needs mom should be gifted this book on the day her child gets diagnosed. The lift to my heart pulled me thru this last week or so, even tho my energy and health is nose diving– I really am excited, I think there is a way out not only for me, but for for all my kiddies who need me strong and sane enough to help them pull thru.

All things told, I started this month thinking that Down-Time was a dreaded thing; and it is pretty awful–something like feeling your whole road ahead crumble.   But there have been some powerful and some subtle but profound blessings, kinda like a special detour route set up by my loving Heavenly Farther.  I haven’t really been up noticing before, but as I sit here with my fixed laptop, it’s time to look back, and it makes me grateful 🙂 … Our family is not only intact thru the stress, but happy!  And the oldest has spent more time with siblings and also been open more to talking about his future wishes and past learning difficulties, something that very seldom happens.  My Hubby (he’ll credit leaning hard on the Lord) has solved some astoundingly huge problems at his high-end engineering job, even while taking a few flex-days off to solve computer problems at home… definitely in the miracle category.  And I have some directions to move forward- huge sigh of relief.  Oh!, and school starts next week (yay!) so- I bought a few more scooby-doo videos to keep the boys going for one more week, and off we go– Great and Glorious adventures, look out,  here I come!

IMG_2270

Categories: LDS Mom of Autism, Midnight musings, resourses | 2 Comments

A Scripture to start the day

1240-800

Isaiah 54:

10 For the mountains shall depart, and the hills be removed; but my kindness shall not depart from thee, neither shall the covenant of my peace be removed, saith the Lord that hath mercy on thee.
11 O thou afflicted, tossed with tempest, and not comforted, behold, I will lay thy stones with fair colours, and lay thy foundations with sapphires.
12 And I will make thy windows of agates, and thy gates of carbuncles, and all thy borders of pleasant stones.
13 And all thy children shall be taught of the Lord; and great shall be the peace of thy children.
14 In righteousness shalt thou be established: thou shalt be far from oppression; for thou shalt not fear: and from terror; for it shall not come near thee.

Categories: Courage quotes | Leave a comment

Love, from Dad

Traveling thru my journal today, to find the encouragement to keep going– I found this letter… I’m sharing because I think it applies to all moms who are trying their best.

IMG_5922_3      My dearest Daughter.
Thanks for the gentle heads up for me as well as Mom. I’m sure it would have dawned on me sooner or later what the calendar day was.  You are truly a wonderful Daughter. You learned well at your mother’s knees; although it’s been a long, LONG time since your were small enough to look out and see only her knees!
I have observed you over the years and you really are a Daughter of God and a Mother in Zion.  All your children will yet rise up and call you blessed.  I love you very much, and yearn to be there with you and all of your family.  It will come soon.  Keep on keeping on, my dear.  Our Father watches, and smiles when you smile and has immense compassion when you struggle, or when your children or hubby struggle.    Always be of good cheer. And remember that doesn’t just mean you have to be smiling all the time.  To be of good cheer, really means to remember the Lord in all you do and say.  It’s OK to be down on occasion.  But then let his countenance shine forth from you and inspire all within your home – and beyond – to look for Him.

Again, Happy Birthday, and all my Love,
Dad

361-800

Categories: Courage quotes, LDS Mom of Autism, Midnight musings | Leave a comment

Stand Strong

2165-800

Quote for today
“Success is not measured by what you accomplish, but by the opposition you have encountered, and the courage with which you have maintained the struggle against overwhelming odds.” -Orison Swett Marden
Mantra day-
Stand Strong-the Lord says I can do this… Stand Strong-the Lord says I can do this… Stand Strong…..

Categories: Courage quotes | Leave a comment

courage scripture for the morning

Be strong and of a good courage, fear not, nor be afraid of them: for the Lord thy God, he it is that doth go with thee; he will not fail thee, nor forsake thee.
… Be strong and of a good courage: for thou must go with this people …
And the Lord, he it is that doth go before thee; he will be with thee, he will not fail thee, neither forsake thee: fear not, neither be dismayed.
(Deut. 31: 6-8)
IMG_4011

Categories: Uncategorized | Leave a comment

Happiness is Forward Movement

It’s amazing how much easier it is to breathe on a day when you can see progress. It allows us to let go of dwelling on the struggle, and focus instead on the hope ahead.

IMG_3569

This quilt is a great example.  I finished the top 2 Christmases ago- right before the sheer weight of all the things involved with a house full of needs swamped me utterly.  But I have felt like the Lord is happy with the choices I have made, and of where I spent my time and energy.  My kids have needed all I had to give the last little while.  In the perspective He has, I guess 2 or 3 years really is a very short time; going through it, however, has felt like a really, really long swim in the deep ocean in the dark– but thankfully, He makes sure that regroup moments do come… Such as this one.  Hubby and Brand helped me build this awesome quilt frame over the weekend- so now I can finish a great project.  Aren’t they awesome?

Categories: LDS Mom of Autism, Midnight musings | Leave a comment

Getting Ready for Scout Camp

Getting ready for scout camp can sometimes mean a little bit more than making sure the sleeping bag is clean.  For my older boys, that’s all I knew what to do– that and cultivating a good friendship with the scoutmaster, so they would listen to me.  But this week I found a great help online- so I borrowed it and made a card – I’m going to get it printed tomorrow, and fold it and laminate it.  Just thought I’d share.

IMG_3567

Categories: LDS Mom of Autism | 2 Comments

Happy “Independence”

287

Guess what? It’s half-way through the year already!  On the one hand, time is moving fast; on the other hand, I didn’t think I would ever get here.  But we did!  July has dawned, and we get to celebrate a great word… independence.

At our house, independence has extra special meanings, because personal independence comes so slow sometimes.  But July 4th really does roll around every year; and growing up really does happen.  Even for my spectrum sweeties, growth comes; and it helps a lot to notice and celebrate these moments.

I remember when our first son was only 2– we went to see a big fireworks show… and he spent the entire time huddled in a ball under my chair with his hands over his ears.  I did not expect that one!  In hindsight, even tho’ I didn’t know it at the time, it was a early sign of things to come.  Now, they all love fireworks; and pilgrimages happen happily -sometimes even in the 100 degree AZ heat.

So- I think I’ll try to capture a few moments of growing independence at our house this week–

funny moment yesterday- DK went “babysitting” (yes really)  As in, the neighbors across the street found themselves with a schedule struggle moment– The Mom had to go and Dad wasn’t quite home yet, so their 9yr old and DK ran here to ask if it was ok for him to stay  at their house till a parent got there (me- “you mean babysit for a minute?”– them- “yeah”)  so I said sure…it’s amazing to me how it feels like it takes an act of courage to jump on the moments of growing up.  🙂  (Those 15 minutes went really well, by the way- DK can focus and act his age in bursts when there is not too much to handle, and I made his sisters stay home.

848-800

And (drum roll)  I finally had a completely free morning, and used it to take Brand up to the DMV and get his written test for his Driver’s License.  This time it was his courage put to the test- but I pulled him along, and now we are so excited…Passed the first try WHOOT WHOOT!  That’s 2 boys down, and a HUGE step forward  hurdled  at our house today.

1326-800

Next week is DK’s scout camp- I’m still trying to get the courage for that one– then it’s the push towards the new school year- I am so excited to not have any more grade-schoolers; my baby starts Jr. High!  I needed that- I will still have 4 different schools to keep track of, and a lot of shuttling– but it’s another drop in my bucket of “they really will grow up”, and I am very grateful.  (happy sigh)

So Happy Fourth!  and think of a few independence thoughts for your family too-

600-800

Categories: LDS Mom of Autism | 2 Comments

Blog at WordPress.com.